My name in Amy I'm 21 and I'm a chronic illness advocate. Some of you may know me from my Youtube Amy's Life (https://www.youtube.com/channel/UCSMv_qGxYv33k9g4aLo0Ejw) and some of you may know me as chronically.ams from my Instagram (https://www.instagram.com/chronically.ams/?hl=en) For those of you who have found me through my Blog and this is possibly the first post of mine your seeing/ reading then welcome!
So heres a refresher for those who need it and an introduction for those who are new here. I grew up in the UK born and raised then moved to Australia and grew up in my Teens here. I was around 16/17 when my health started to really decline (although I experienced symptoms 2-3 years prior to this) which was when I was first introduced to the 'Chronic Illness community' and in November 2015 I decided to make a separate Instagram and focus it just on my health journey. I Started my Instagram to reach out to others in the same position suffering with chronic illness, and in doing so I've met so many people which I now couldn't live without! It's also opened me up to so many opportunities that without Instagram would have never been possible.
My main diagnosis's are as follows although most of them are complications of Ehlers Danlos Syndrome (a rare connective tissue disorder), Postural tachycardia syndrome, Gastroparesis, Intestinal dysmotility, Mast Cell Activation Disorder, Chronic Fatigue Syndrome, Heart Murmur, SVT and a few more. I am currently fed via a feeding tube which goes into my intestines because my stomach is paralysed and I can't digest food properly. I will do seperate posts on my chronic illness in the future but for now, that is pretty much the basic's of my journey so far and what led me to want to make a Blog.
My goal for this Blog is to not feel pressured to post or upload and for it to be a fun side project that I can work on in my spare time but also post fun helpful posts that hopefully you guys will enjoy! Not only that but also help reach a new audience that maybe I haven't already with my Youtube and Instagram, and even share things that I wouldn't normally share on my other social media platforms. I guess we will just see where this takes us! :)
Finally I just wanted to say, that sharing my story is one of the best decisions I've ever made it's so important to show people what it's like to live with chronic illnesses and show people that you can still live and do things. I might jus do things in a different way or take a different path to get to my goals, doesn't mean I'm going to give up or that I can't get there! It's what makes me special and thats not a bad thing. If having a progressive illness has taught me anything its that I need to stop worrying about what I can't do and worrying about 'what if's' and just live in the moment and just take things one day time and appreciate every day and every little good moment that you can get.
Never stop fighting for what you believe in. No dream is too Big.